SPMS – 2/8/19

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Scooterjon says – I found this information on the MS Society website. I was diagnosed in 1991 with RRMS. In 2004 my neurologist said I could now consider myself to be SPMS. If I remember correctly I wasn’t showing any new symptoms but my gait was worse, I had more fatigue and other symptoms I had at the time seemed to be getting worse. Now, 15 years later one thing I’ve been noticing is this. My hand coordination seems to be off a little. I’ve been dropping alot of things these days. Items such as food, knives and spoons and my Coke on the floor.

Secondary progressive MS (SPMS) is a stage of MS which comes after relapsing remitting MS for many people. With this type of MS your disability gets steadily worse. You’re no longer likely to have relapses where your symptoms get worse but then get better.

In the past, before DMTs came along, it usually took around 20 years for relapsing MS to change into secondary progressive MS. But thanks to today’s MS drugs this is changing:

* Fewer people are likely to go on to secondary progressive MS
* For those that do, this could take longer to happen

Secondary progressive MS can be hard to diagnose. Before a neurologist will tell you that you’ve got this kind of MS, they’ll look for signs that your MS has been getting steadily worse for six months.

It’s possible that when you’re first diagnosed with MS you could be told you have secondary progressive MS. This is rare but can happen if symptoms of the relapsing remitting phase of your MS weren’t diagnosed correctly or were ignored.

Secondary progressive MS is different from primary progressive MS, which is progressive from the beginning. I tell people secondary is the same as progressive except it takes more years to become really debilitated. In my case it was 20 years.