*SCOOTERJON’S SITE IS UNDER CONSTRUCTION. ALL POSTS ARE UNDER SYMPTOMS*
Sign up below for Scooterjon’s monthly newsletter! Thanks for reading!
My name is Jon Wegner aka Scooterjon. I currently live in North Dakota, USA
after being a lifelong Minnesotan. It’s hard to believe I’ve lived in North Dakota
for 15 years, with the last 10 in West Fargo! Geez, time flies! I write posts and
a blog at scooterjon58.com. My blog is about my disease which is Multiple
I was diagnosed with Relapsing Remitting Multiple Sclerosis (RRMS) in 1991 at
the age of 33. My MS has steadily worsened every year since that ’91 diagnosis.
In 2004 my neurologist said I should consider myself to have Secondary Progressive
Then in the fall of 2011 my MS took another turn for the worse and into a real
life changing disability. After an MRI in October of 2011 my neurologist found
more MS lesions had developed on my spinal cord. Those lesions are disrupting
my body functions below the waist including standing, walking, bowels, bladder
and balance. I stopped walking at the age of 53.
Luckily, I can still drive my van with the help of hand controls and a ramp inside
my mini-van. I also had to teach myself how to do every day things like cooking,
cleaning, laundry, showering, etc. while sitting on my three wheeled scooter.
I’ve ridden 3-wheeled scooters since 1996. Back then I would ride one if I knew
I’d be somewhere and was going to be walking alot. Nowadays, I ride my scooters
100% of the time hence my nickname. I always thought the loss of my legs was
the worst thing MS could do to a person but I was wrong. I explain what I think
is the worst in the next paragraph.
This is embarrassing to say but I’m an open book and there is nothing I can do
about it anymore. In July 2016 I started losing control of my bowels. Losing bowel
control has really messed my head up. Sometimes,I feel like a baby all over again.
I’ve had anxiety problems since the early 1990’s but losing control of my bowels
has made my anxiety worse! Not knowing when I’m going to have a BM has also
turned me into a part-time recluse. I spent the winter of 2018 inside my apartment
which I know isn’t good for me, either.
I turned 60 in March of 2018. I hope that I have 20 or more years left. After being
a coordinated athlete my entire life sometimes it’s hard to admit that I’m now
considered a disabled man. My blog is about my MS, the symptoms and personal
stories. And believe me, I have alot of personal stories to tell. That being said, it’s
still hard watching your body falling apart right before your eyes!