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My name is Jon Wegner aka Scooterjon. I live in North Dakota, USA after being a lifelong Minnesotan. It’s hard to believe I’ve lived in North Dakota for 15 years. I write articles and a blog at scooterjon58.com. My blog is about my disease which is Multiple Sclerosis (MS). I’m not a doctor, I don’t play one on TV and I don’t give advice. I just know how my MS has made me feel for the past 27 years! I was diagnosed in 1991 at age 33. In January of 2000 my MS started to get progressively worse. Then in November of 2011 my MS turned into a real life changing disability.
My neurologist now considers me to have Primary Progressive MS (PPMS). More MS lesions were found on my spinal cord in October/November 2011. Those lesions are disrupting all the body functions below my waist. I also never knew and no one ever told me that SPMS could turn into PPMS. It just goes to show you what researchers and doctors don’t know about our little disease called multiple sclerosis!
I always thought the loss of my legs was the worst thing my MS could do to me. However, in July 2016 I started losing control of my bowels. Losing bowel control has really messed my head up. I’ve had anxiety problems since the 1990’s but losing control of my bowels has made my anxiety even worse! Not knowing when I’m going to have a bowel movement has also turned me into a part-time recluse. I spent the winter of 2018 inside my apartment which I know isn’t good for me, either.
I turned 60 in March of 2018. I figure and hope that I have 20 or so years left. After being a coordinated athlete my entire life sometimes it’s hard to admit that I’m now considered a disabled person but I am. My blog is about my MS, the symptoms and personal stories. After 27 years with the disease I have alot of information and stories to tell. As an adult though, it’s hard watching your own body falling apart right before your eyes!